First Dose of Moderna in April of 2021
Second Dose of Moderna in June of 2021
Booster Dose of Moderna in January of 2022
Oregon
43 yrs old
Katya has opted-in to be contactable by the public and other vaccine injured. No hateful emails or you will be banned. Her email is triskelunaa@gmail.com
Q: What was your life like before you got the vaccine?
Life before the vaccine was very normal. No health issues. I could eat whatever I wanted, and my blood pressure was normal.
Q: Would you like to share your reason(s) for getting the vaccine?
I thought I was doing my part in helping to stop the spread of covid. I trusted that they would not be administered unless they were safe.
Q: What was your reaction, symptoms, & timeline?
After receiving the booster, I started getting stroke level hypertensive reactions to eating food. I would eat and then experience acute blood pressure spikes that would go from normal to stroke level within 15 minutes. My body would shut down, I could barely walk, my speech would get slurred, I couldn't think straight, I would feel like I was going to black out, and I would get clumsy.
This was happening for several months before I received the diagnosis of Mast Cell Activation Syndrome. These symptoms began stretching into other aspects of life. I would have mini blackouts when walking. Sometimes I would just try to take a walk and end up having to stop in someone's yard because I was near passing out. My stomach would bloat with discomfort, I would wake in the middle of the night with heart palpitations and adrenaline dumps, my lungs felt tight like I couldn't get a good breath of air, and I lost 15 lbs from basically no longer eating.
Summer heat made it all much worse as did Oregon wildfire smoke. It has been almost a year now and I somewhat have symptoms under control with histamine blockers and by drinking medical food shakes in the morning, and eating the same 5 "safe" foods for dinner.
There is now a lot of trauma around food. I have had to come to accept, that I will never get to eat like a normal person again. When I deviate, I go right back to having the attacks.
I have several thousands of dollars of medical bills from ER visits and tests from trying to determine what was wrong with me. At one point, we thought I had a rare cancer called Pheochromocytoma but it turned out to be MCAS.
My doctor believes the MCAS was triggered by the last booster shot as there is no other logical explanation. One of the times I had a reaction was in an allergist office when I was getting an injection to treat my dust mite allergy. I had the hypertensive reaction and they realized it was not a typical allergic response, nor was it a panic attack. They had to send me to the ER because my blood pressure was so high I needed immediate medical attention.
I very literally thought I was going to die many times this year, and there are times where I kind of wanted to. I couldn't go on hikes anymore, I lost my strength, and the constant mini strokes had hurt my cognition. I couldn't focus or concentrate the same way. I felt like my IQ took a hit.
It made me sad and hopeless. I felt isolated and alone and many around me couldn't understand it. I had never wanted to die before all of this and suddenly I was sometimes wishing I would because I couldn't imagine going on with these issues.
Q: Tell us about any tests, diagnoses, and/or Medical Care received:
Multiple ER and Urgent Care visits. Heart monitoring tests. Tested for Pheochromocytoma.Various blood tests. Tests to check protein spike.
Q: Are there any treatments that have helped or hurt your health?
The only thing that helps is H1 & H2 blockers, fasting, high dose vitamin C (mast cell stabilizer), and abstaining from most foods, especially high histamine foods.
Q: Have you had Covid before?
I have never had covid that I am aware of.
Q: What do you wish others knew?
I want everyone to think very carefully about choosing to get this vaccine. I would have never imagined something like this would happen. I would never want another person to go through this. Please try to research before making your decision.
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Real Not Rare does not diagnose medical conditions, offer treatment advice, treat illnesses, or prescribe medicine or drugs. Anything contained on this website or conveyed in the blog stories or groups, is not substitute for adequate medical care, diagnosis, and/or treatment from a medical doctor. It is strongly recommended that prior to acting upon any information gleaned via Real Not Rare or their representatives, you at all times first consult a physician. The views and opinions expressed are those of the individual being interviewed in each story, and do not necessarily reflect the position of Real, Not Rare as a whole.
