First Dose of Pfizer on 04/05/21 Lot #EW0150
Second Dose of Pfizer on 04/26/21 Lot #EW0175
New York
41 yrs old
Chenoa has opted-in to be contactable by the public and other vaccine injured. No hateful emails or you will be banned. She has asked that all contact be made through her GofundMe page at https://gofund.me/4ed124c7 or twitter: ChenoaElizabeth
Chenoa’s update 03/02/2023:
I lost everything including my home due to the financial repercussions of my vaccine injury. I have spent the past two months homeless. Because I lost my apartment, I have been separated from my two senior cats who are the only family I've ever had. The only reason why I haven't killed myself is the hope to be reunited with them one day.
Thankfully, I have spent most of the two months hospitalized so I've avoided sleeping on the streets. In addition to my usual hospital procedures, this time I had to get a blood transfusion and Retacrit injection to stimulate my bone marrow because the kidney damage has left me severely anemic.
I still haven't gained access to the Rituximab infusion treatment for my Minimal Change Disease and Nephrotic Syndrome. I never had any prior health issues before this, so this entire experience over the past two years with the US healthcare system has been an absolute shock. It's been disheartening and frustrating to experience firsthand the embedded racial, gender, and class bias that interferes with health equity. I can genuinely say that these biases have been the main obstacle in the way of regaining my health.
My focus has always been on healing and surviving the financial repercussions of my adverse reaction. I didn't beat myself up for making the choice to get vaccinated, but now I'm overwhelmed with regret over my decision. I have destroyed my life and there is no coming back from this level of devastation.
ORIGINAL INTERVIEW ON 09/06/2022:
Q: What was your life like before you got the vaccine?
A healthy vegan of fifteen years with no previous physical health issues.
Q: Would you like to share your reasons for getting vaccinated?
As a precaution to keep myself and my community healthy. I worked as an essential worker, so staying safe while I was risking my health was important.
Q: What was your reaction, symptoms, & timeline?
I developed Minimal Change Disease & Nephrotic Syndrome from an adverse reaction to the Pfizer vaccine. I went from being a healthy vegan of fifteen years to having severe kidney damage overnight.
Minimal change disease (MCD) is a condition that damages the tiny blood vessels in your kidneys (glomeruli) that clean your blood. If your kidneys cannot filter, providing clean blood, all organs will eventually shut down. MCD causes Nephrotic Syndrome, which includes symptoms of too much protein in your urine, insufficient protein in your blood, and high cholesterol. MCD is called “minimal change” disease, because the damage to the blood vessels is too small (minimal) for doctors to see under a regular microscope.
Q: What is your life like now, after getting the vaccine?
Chronic illness has quickly become the center of my universe, snuffing everything else out. I had to stop working, leaving no way to support myself. I’ve stepped back from the volunteer activities that I love. After a series of unfortunate events, I finally had the opportunity to return to college, but my poor health has interfered with my academic performance. Now that I am immunocompromised, I have to limit how much time I spend in public, making basic errands very challenging, and isolating because I cannot connect with friends. Physically, my body just can’t keep up with life’s everyday demands. On the most hopeful days, I feel so energized, like a full recovery is within reach, but it never lasts. Most days, I am too fatigued and sick to leave my bed. When my kidneys are at their worst, I fill up with pounds and pounds of toxin-filled water my kidneys cannot filter, being left unable to move.
The past year has been jam-packed with specialist appointments, ER visits, hospital stays, prescription costs, insurance frustrations, awful symptoms, an unbelievable amount of water retention pounds that had to be medically removed, and the brutal side effects of the Prednisone steroid treatment. I’ve been prescribed a high dosage of Prednisone for the past year. A steroid that is alarmingly known by its nickname, the “Devil’s TicTacs”, because of its 150 known terrible side effects. However, after a year of battling both the physical and emotional side effects of Prednisone, it’s now apparent I am steroid resistant. Research suggests that only 5-10% of adults with MCD are steroid-resistant. Since I’m ending steroid treatment, my nephrologist is switching me to an immunosuppressant treatment plan. Kidney transplant patients are normally prescribed this immunosuppressant medication, Tacrolimus. I haven’t started it, and not sure I will because of the damaging side effects.
At this point, I’m not sure if I’ll succumb to the illness itself, or the just as deadly financial repercussions of this adverse reaction.
Q: Share your experience with any medical care and any diagnoses you have received:
I had my case published. I’m patient number two.
Q: Was your reaction reported, and what was the response?
VAERS. Once reported by my Nephrologist, the FDA & CDC contacted his office for my medical records.
Q: Is there anything that has helped or hurt your health?
A year of Prednisone treatment that has been more harmful than helpful.
Q: Have you had Covid before?
No
Q: What do you wish others knew?
It's a painfully real experience that isn't rare. It’s hard not to feel completely abandoned. It’s overwhelming to suffer the consequences of another’s negligence.
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Related Scientific Publications/Case Reports:
1250+ Peer-Reviewed Publications: https://react19.org/1250-covid-vaccine-reports/
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